The FOX Den for FOXG1 Parents & Caregivers - April Issue
Monthly Newsletter for the Community of FOXG1 Parents & Caregivers
We're Moving to A New Fundraising Platform!
This new platform will make donating and fundraising easier, faster, and more impactful. Bloomerang/QGiv offers a cleaner design, a more user-friendly experience, and better tools to help us fundraise.
Important note: As part of the switch, every family will need to create a new fundraising team page when we go live. But don’t worry, we’ll walk you through it step-by-step, and it’s going to be worth it! Your team page will be even more beautiful, more customizable, and more powerful for raising critical research funds.
Shop the FOXG1 Mother’s Day Collection
Mother’s Day is right around the corner and our Mother’s Day Collection just dropped in the official FOXG1 Store, featuring two brand-new designs!
We made this collection for you. Because you deserve to feel seen, celebrated, and supported. Not just on Mother’s Day. Every day.
Just a few FOXG1 Mother’s Day items
Upcoming Meetings
FOXG1 Fundraising Committee
April 16th at 12:30pm EDT and April 30th at 12:30pm EDT
The FOXG1 gene therapy program is progressing beautifully, but we need your help to raise funds to bring this treatment into and through clinical trials. Be part of the team and join our bi-weekly Zoom fundraising meetings.
FOXG1 Parents Connect Support Zooms
April 24th at 12pm EDT and 8pm EDT
This month’s topic for the FOXG1 Parents Connect Zoom is Adaptive Gear & Gadgets! From wheelchair models and communication devices to car seats and everyday tools, this session is all about sharing the gear that makes life a little easier. Whether you’ve discovered a game-changing gadget or are looking for new ideas, join us!
Sign up for the Parent & Caregiver Newsletter to receive zoom link!
FOXG1 Advocacy Team
May 14th at 12pm EDT
Together, we are stronger. In our next meeting, we’ll be sharing updates, discussing upcoming initiatives, and continuing to build momentum together.
Live Joyfully Education Ambassador Program
Help spread disability inclusion in schools! The Live Joyfully Education (LJE) program is designed to teach children about rare diseases and the importance of inclusion.
