FOXG1 Parents Connect Support Group | Monthly Topic: Sleep (or lack thereof)
In our recent FOXG1 Parent Connect Zoom session, families came together to share real-life sleep struggles and solutions for children with FOXG1 syndrome. From medication insights and bedtime routines to helpful equipment and the importance of sleep studies, this summary highlights the most practical tips and tools discussed. Whether you're seeking ideas or comfort in shared experience, these takeaways are here to support your journey.
Seizure Action Plan: World Epilepsy Day
February 12th is World Epilepsy Day, and epilepsy is one of the most debilitating characteristics of FOXG1 syndrome. According to the FOXG1 syndrome patient registry study, more than 61% of FOXG1 patients suffer with seizures.
We want to share this wonderful resource from The Epilepsy Foundation. More.